here’s a nice letter dara wrote for ian’s pre-school class about emmett:::
Pride in Identity as a Special Needs Mom
Having children is quite the life-changing experience, as you know. I am proud of my kids. Who they are, what they need, and how I provide for them have contributed to my identity.
My oldest son, age seven, is profoundly brain-injured due to lack of oxygen at birth (he was stuck with the cord around his neck while I pushed for over 4.5 hours). Because the part of his brain that controls his muscles was damaged, he cannot walk, sit up, roll, crawl, speak, or even point. He cannot successfully grab or play with toys. He struggles regularly throughout each day to clear his throat. He is fed through a tube in his belly. He has seizures that vary from mild to severe. His legs are extremely stiff and difficult to open to change his diaper. His body has become deformed because of how his abnormal muscle tone has built the shape of his bones over time. He uses a wheelchair. A simple head cold is an unbearable experience. I have learned a lot about brain injuries. Continue reading