Family

rest

would be nice to be wakened after a great night sleep by calmness. i could use a vacation from the way too early morning crying / screaming Emmett and Mackenzie alarm clockš the day to day grind of being a parent never ends. compound that with Emmett and his special needs and I’m overdue for…

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bliss, death and forever numbers…

at dinner I asked Ian what we should name our new (2003 vw eurovan) van. he responded, “bliss!” this is so true. it’s big enough that we can roll Emmett up a fold out ramp and he can stay in his wheelchair! this is truly blissful later, he asked me, “when am I going to…

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seizure icing on poop cake

“Hmmmm, can’t say I enjoyed today too much — started the day at 4:40 am, James off to run a race at 7 am, mid-morning massive diarrhea via Emmett, MacKenzie teething like mad, and finally gave Emmett diastat (rectal seizure med) after too many small seizures today to count. Could have been much worse though….

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marriage promise

“Ian insisted I promise him he could marry his sister when he gets old.” – dara

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swing dancing and bruschetta

had an AWESOME fun time swing dancing with dara @ york st. cafe. also ordered some wonderful bruschetta: sour dough pesto tomato goat and mozerall balsamic vinegar toast it… yum!

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multi task

handling client needs, writing proposals, wiping snotty noses, listening to dreams and ideas, getting kids dressed, making lunch, going, fast, plates and food thrown on floor, crawling on table….

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prayers for emmett…

got this email from someone looking at sean’s sax… James, Thanks for allowing me to stop by.  This may seem a bit odd but I don’t think I shared everything that I should have last night.  It may not be chance that you are selling the sax for Sean and that I stopped by.  Besides…

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skateboard broken ankle 6 years ago

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talk

i pray emmett will talk and communicate with us / the world someday soon!

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best jobs america

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firepit

opening day of the fire pit. good times. Liam fell in the pond. ;( tried to get some vibram five fingers today. all sold out. sales went up 300% last year.

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alarm clock

would like to wake up to happy smiley kids. not emmett and mackenzie crying. emmett got valium @ 5a.m. and didn’t go back to bed. dara said his back was really tight; when she touched it he would cry. poor guy. sleep is necessary.

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striking the balance of dadhood

today i got to take care of the kids from sunrise to sunset. dara went to work around 7:45 and i was supposed to put emmett on the bus @ 8:30. around 8, nurse staffing calls and tells me that emmett’s nurse tara’s car had broken down. it then became my responsibility to take emmett…

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lifetime of crying

robbed. Emmett of an entire life. Dara and I of sanity and smiles from missed childhood fun. Emmett cries too much and we can’t relieve his physical and emotional pain and frustration.

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Transcended by Words

Jemma Leech, a 5th grader with cerebral palsy, writes her way to contentment. ohhhh emmett, please come out and talk to us. 🙂

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papa

hearing a boy walking desperately around chile looking for his papa on npr broke my heart. paapa.

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games…board games

ideas to make wooden gifts krokinole: http://www.crokinole.com/ http://www.hilinski.net/woodgames/index.html marble run – this guys ingenious! buy other boardgames http://www.boardgamegeek.com/ wooden puzzles

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kidos…love them!

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fireman ian

found this pic from 2007.11.17 – it’s the same guy i love!

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quote’n

ian coming down from the bathroom, “i had a huge poop the shape of greenland!” yesterday as we were sitting at the kitchen table i was watching him draw / trace with his finger the shapes in the window. well, at least that’s what i thought he was doing. i asked him what he was…

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