stoopid heart strings. remember how good you have it and love your family and friends if you share this life with them.
On July 26, 2013, we took Sam to the pediatrician. Over the past few weeks, he was smiling less frequently and laughing differently but we chalked that up to random toddler behavior. When his eyes began looking unfocused, we got worried. At noon, the pediatrician recommended we see a neurologist immediately. At 2pm, the neurologist admitted Sam to the hospital and recommended an MRI. At 5pm, Sam was sedated for an MRI. That night, we heard the worst: Sam has a large, inoperable, incurable brain tumor. (The technical condition is called Diffuse Intrinsic Pontine Glioma – DIPG).
Sam has begun his radiation and chemotherapy treatments. These will continue for six weeks and, with any luck, will buy us some good time with Sam. We would like to spend our remaining time with Sam, likely less than a year, making every moment matter.
Sam’s twin baby sisters, Ada and Mae, were born August 6, 2013.
– Mike & Erin