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emmett graduated pre-school and off to kindergarten. what you don’t see in this picture is how emmett was screaming for the first 1/3 of the festivities. making it difficult to concentrate on what was going on with the graduation. but heck, this is reality.i think it’s because he despises waiting. dara went up to him…
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would be nice to be wakened after a great night sleep by calmness. i could use a vacation from the way too early morning crying / screaming Emmett and Mackenzie alarm clockš the day to day grind of being a parent never ends. compound that with Emmett and his special needs and I’m overdue for…
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https://atl.etapestry.com/fundraiser/BuildingBlocksforKids/adopt-a-child/individual.do?participationRef=619.0.50934925
Read More...“Hmmmm, can’t say I enjoyed today too much — started the day at 4:40 am, James off to run a race at 7 am, mid-morning massive diarrhea via Emmett, MacKenzie teething like mad, and finally gave Emmett diastat (rectal seizure med) after too many small seizures today to count. Could have been much worse though….
Read More...makes me sick to my stomach that we can’t get emmett stem cells from mackenzie or ian… man, i want him to get them sooooooooooooo bad. An internationally known pioneer in using umbilical cord stem cells will research novel cerebral palsy treatments thanks to a $10.2 million gift to Duke University. The money from the…
Read More...Just wrote this letter relating to Stem Cell Cord Blood article i just read… MCG conducting stem cell trial in pediatric cerebral palsy original story Jennifer Hilliard and Dr. Carrol, Is it possible to get my son Emmett in your Stem Cell Trial Cord Blood Study? He is 6 years old and has CP from…
Read More...got this email from someone looking at sean’s sax… James, Thanks for allowing me to stop by. This may seem a bit odd but I don’t think I shared everything that I should have last night. It may not be chance that you are selling the sax for Sean and that I stopped by. Besides…
Read More...today i got to take care of the kids from sunrise to sunset. dara went to work around 7:45 and i was supposed to put emmett on the bus @ 8:30. around 8, nurse staffing calls and tells me that emmett’s nurse tara’s car had broken down. it then became my responsibility to take emmett…
Read More...robbed. Emmett of an entire life. Dara and I of sanity and smiles from missed childhood fun. Emmett cries too much and we can’t relieve his physical and emotional pain and frustration.
Read More...Jemma Leech, a 5th grader with cerebral palsy, writes her way to contentment. ohhhh emmett, please come out and talk to us. 🙂
Read More...we’re broke (i’ll blog this later). our problem is we need a new wheelchair accessible van. it’s getting really difficult lugging emmett’s chair around. taking him out of the chair, putting the chair in the back of the van, etc… the chair is pretty heavy for me; i can’t imagine how it feels for dara….
Read More...got to spend the day at home again taking care of the kids. i LOVE it! man, how blessed am i to have wonderful kids. emmett came home from school with a cough and sniffles. DAMN. man, the poor guy can’t get a break and neither can we. he was struggling to get to bed….
Read More...‘I screamed, but there was nothing to hear’: Man trapped in 23-year ‘coma’ reveals horror of being unable to tell doctors he was conscious http://www.dailymail.co.uk/news/worldnews/article-1230092/Rom-Houben-Patient-trapped-23-year-coma-conscious-along.html#ixzz0Xjy8rgKM
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